Inspiration, guidance and support to create freedom, peace and purpose.
A story of life with ME/CFS Towards the end of two weeks of being able to do very little, after my Covid jab, I was getting a little cabin fever. It didn’t help that we’d had a couple of rainy weeks before the vaccination and I hadn’t been going out for my (very short) walks. … Read more
I was quite surprised when I received the text to book my second vaccination as it was only 8 weeks since I’d had the first. Most people here, have a 12-week gap between their two doses. Another inconvenient anomaly was that I was only offered appointments on the following day. Usually this would not be … Read more
A few years ago, for ME/CFS awareness month, I took part in a blog chain called #ThisIsME set up by the lovely Louise, the ‘Get up and Go Guru’. Today I wanted to start writing an awareness post for ME/CFS Awareness month but I was at a bit of a loss for where to start … Read more
Knowing I was choosing the consequences Living with a chronic illness like ME/CFS can leave us with some with some very tough decisions to make. The best way we can control being as well as possible, is to choose to live within our energy envelope. But to really do that, we have to let go … Read more
May 12th is international ME/CFS, Fibromyalgia, MCS and Lyme disease awareness day. Instead of my usual self-help theme, this post is aimed at spreading awareness of what it’s like to live with such a condition. This year, as a result of lockdown, there is more potential than ever to help people understand what it is … Read more
One of the things that I’m not very good at is taking a day off. Part of that is the pressure of running my own business and trying to make ends meet. Partly, it’s because I have a great routine that supports my well-being but means I can only work a maximum of 4 or … Read more
I wrote this post to take part in the Mass Observation day that this year coincides with the international ME/CFS awareness day, thinking I could kill two birds with one stone. The idea of the mass observation is that it captures the every day lives of people int the UK. Although I’m not actually in … Read more
About 10 days ago my parents and I braved the snow and went to see Jenifer Brea’s award-winning documentary ‘Unrest’ at a showing in a local church hall. Unfortunately, the next day I was hit by a viral crash and I had to abandon my attempt to write the review I’d planned because I simply … Read more
I’ve written this post for Invisible Illness Awareness Week. You can find more ’30 things’ posts and instructions for doing your own at this link. The illness I live with is: ME/CFS (Myalgic Encephalomyelitis, sometimes diagnosed as Chronic Fatigue Syndrome) I was diagnosed with it in the year: 1996 but I recovered completely in 2001 only … Read more
